What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
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994 views3 months ago
YouTubeEB Research Partnership
Raising awareness for Epidermolysis Bullosa
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Epidermolysis Bullosa Mnemonic You’ll Never Forget 🦋
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There are only a handful of EB clinics in the country, with most being at children’s hospitals. Cincinnati Children’s is the closest from home for me and currently patients with EB are seen there regardless of age. Especially having RDEB, it takes a whole team of specialized providers familiar with many of the other symptoms that can be caused and how to best manage them. People with EB are living longer nowadays and there is much hope for more specialized care for adults. 😏 PS I’m still very g
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The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
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